• J. Child Neurol. · Oct 2021

    Neuropalliative Care for Neonates.

    • Sharla Rent, Margarita Bidegain, Margaret H Bost, Chi Hornik, and Monica E Lemmon.
    • Department of Pediatrics, 12277Duke University School of Medicine, Durham, NC, USA.
    • J. Child Neurol. 2021 Oct 1; 36 (12): 1120-1127.

    AbstractMany childhood neurologic conditions are first diagnosed in the perinatal period and shorten or seriously alter the lives of affected infants. Neonatal neuropalliative care incorporates core practices and teachings of both neurology and palliative care and is directed toward patients and families affected by serious neurologic conditions in the antenatal and immediate newborn period. This review outlines key considerations for neurologists hoping to provide a neuropalliative care approach antenatally, in the neonatal intensive care unit, and around hospital discharge. We explore 4 core domains of neuropalliative care: (1) family-centered communication, (2) prognostication, (3) decision making, and (4) pain and symptom management. We address special considerations in care at the end of life and in varied cultural and practice contexts.

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