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Acta Neurochir. Suppl. · Jan 2008
The QOLIBRI--towards a quality of life tool after traumatic brain injury: current developments in Asia.
- J L Truelle, K von Wild, S Höfer, E Neugebauer, T Lischetzke, N von Steinbüchel, and QOLIBRI Group.
- Service de médecine physique et de réadaptation Centre hospitalo-universitaire, Garches, France. jean-luc.truelle@wanadoo.fr
- Acta Neurochir. Suppl. 2008 Jan 1; 101: 125-9.
IntroductionThere is no disease-specific health-related quality of life (HRQoL) tool devoted to traumatic brain injury (TBI).Material And MethodsOver 1500 TBI patients from 10 countries filled out a preliminary version of the QOLIBRI taking TBI specificities into account. 3 successive versions and consecutive statistical analyses were necessary to get a psychometrically-reliable tool.ResultsThe QOLIBRI final version, filled out in 15 min, consists of 2 parts. The first part assesses satisfaction with HRQoL and is composed of 6 overall items and 29 items allocated to 4 subscales: thinking, feelings, autonomy and social aspects. The second part, devoted to "bothered" questions, is composed of 12 items in 2 subscales: negative feelings and restrictions. The 6 subscales meet standard psychometric criteria. In addition, 2 items evaluate medical-oriented aspects. The questionnaire is validated in German, Finnish, Italian, French, English, Dutch.ConclusionTBI patients may now be assessed, beyond more "objective" measures including handicap and recovery, with a new measure of assessing the TBI patient's own opinion on his/her HRQoL, applicable across different populations and cultures. Validations in China Mainland, Hong-Kong, Taiwan, Japan, Egypt, Poland, Norway, Indonesia, and Malaya are on the way.
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