• Zacharias Lithin, Priya T Thomas, G Manjusha Warrier, Adhin Bhaskar, Saraswathi Nashi, Seena Vengalil, Kiran Polavarapu, Preethish Kumar, Ravi Yadav, Suvarna Alladi, Nalini Atchayaram, and Pramod K Pal.
• Department of Psychiatric Social Work, NIMHANS, Bengaluru, Karnataka, India.
• Ann Indian Acad Neur. 2020 May 1; 23 (3): 313-317.

Background And AimsPalliative care is an important area of intervention in neurodegenerative diseases. The aim of this study is to understand the relationship between Palliative Care Needs and Caregiver Burden among persons diagnosed with neurodegenerative diseases.MethodsA cross-sectional study design was adopted to explore the research problem. A prospective sample of 120 participants (60 Patient Caregiver dyads) of Motor Neurone Disease (MND) and Parkinson's disease (PD) were recruited for the study based on inclusion and exclusion criteria from a quaternary referral care centre for neurology in south India. Patients seeking care were recruited for the study consecutively. Palliative care outcome scale and Zarit Burden Interview scale were administered to understand the relationship.ResultsIt was found that Palliative care outcomes score was positively correlated with caregiver burden (r = 0.597), showing that there is a bi-directional relationship between palliative care needs and caregiver burden.ConclusionIrrespective of the differences in illness characteristics, the study found that palliative care needs are high among chronic neurological conditions which requires a noncategorical psychosocial approach in ensuring care.Copyright: © 2006 - 2020 Annals of Indian Academy of Neurology.

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