• Amitava Banerjee, Laura Pasea, Sinduja Manohar, Alvina G Lai, Eade Hemingway, Izaak Sofer, Michail Katsoulis, Harpreet Sood, Andrew Morris, Caroline Cake, Natalie K Fitzpatrick, Bryan Williams, Spiros Denaxas, Harry Hemingway, and and members of the Health Data Research UK COVID-19 Patient and Public Involvement and Engagement Panel.
• University College London, London, UK, honorary consultant cardiologist, University College London Hospitals NHS Trust, London, UK, and honorary consultant cardiologist, Barts Health NHS Trust, London, UK ami.banerjee@ucl.ac.uk.
• Clin Med (Lond). 2021 Nov 1; 21 (6): e620e628e620-e628.

AbstractPatients and public have sought mortality risk information throughout the pandemic, but their needs may not be served by current risk prediction tools. Our mixed methods study involved: (1) systematic review of published risk tools for prognosis, (2) provision and patient testing of new mortality risk estimates for people with high-risk conditions and (3) iterative patient and public involvement and engagement with qualitative analysis. Only one of 53 (2%) previously published risk tools involved patients or the public, while 11/53 (21%) had publicly accessible portals, but all for use by clinicians and researchers.Among people with a wide range of underlying conditions, there has been sustained interest and engagement in accessible and tailored, pre- and postpandemic mortality information. Informed by patient feedback, we provide such information in 'five clicks' (https://covid19-phenomics.org/OurRiskCoV.html), as context for decision making and discussions with health professionals and family members. Further development requires curation and regular updating of NHS data and wider patient and public engagement.© Royal College of Physicians 2021. All rights reserved.

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