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J Pain Symptom Manage · Mar 2022
Education in Palliative and End-of-Life Care-Pediatrics: Curriculum use and dissemination.
- Andrea C Postier, Joanne Wolfe, Joshua Hauser, Stacy S Remke, Justin N Baker, Alison Kolste, Verónica Dussel, Mercedes Bernadá, Kimberley Widger, Adam Rapoport, Ross Drake, Poh Heng Chong, and Stefan J Friedrichsdorf.
- University of California San Francisco Department of Pediatrics, Center for Pediatric Pain, Palliative and Integrative Medicine (A.C.P., S.J.F.), UCSF Benioff Children's Hospital, San Francisco, California, USA. Electronic address: andrea.postier@ucsf.edu.
- J Pain Symptom Manage. 2022 Mar 1; 63 (3): 349-358.
ContextThe majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide.ObjectivesAssessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction.MethodsFrom 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses.ResultsAbout 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions.ConclusionEPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.Copyright © 2021 The Authors. Published by Elsevier Inc. All rights reserved.
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