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J Pain Symptom Manage · May 2022
Progress update: Palliative care development between 2017 and 2020 in five African countries.
- Emmanuel Luyirika, Diederik Lohman, Zipporah Ali, Mackuline Atieno, Anna Mahenge, Paul Mmbando, Esther Muinga, David Musyoki, Mark Donald Mwesiga, Eve Namisango, Peter Nosim, Geoffrey Opio, Sara Pardy, Aimable Ruzima, Eva Skowronska, Blaise Uhagaze, Joyce Zalwango, and Aggrey Aluso.
- African Palliative Care Association (E.L., E.N.), Kampala, Uganda.
- J Pain Symptom Manage. 2022 May 1; 63 (5): 729-736.
ContextThis article provides a progress update on the development of palliative care in five countries in Africa-Kenya, Rwanda, South Africa, Tanzania, and Uganda-between 2017 and 2021, and explores the role of palliative care advocates and the Open Society Foundations in this process.ObjectivesTo provide a progress update on the development of palliative care in Kenya, Rwanda, South Africa, Tanzania, and Uganda between 2017 and 2021 and to examine the impact of twenty years of Open Society Foundations support for palliative care in the region on the integration of palliative care into publicly funded health systems.MethodsIn the mid-2000s, palliative care pioneers in these five countries, supported by Open Society Foundations, began to train health care providers and engage policy makers to ensure that people with life-limiting illnesses and their families had access to appropriate services and essential medicines. In the late 2010s, it embraced an approach that mixed strategic communications and advocacy for inclusion of palliative care into universal health coverage with technical assistance.ResultsBy the mid-2010s, a vibrant palliative care community existed that worked closely with governments to develop palliative care policies, train providers, and ensure access to morphine. By 2021, Kenya and Rwanda had made significant progress scaling up palliative care services as part of the public health care system, and Uganda's government had instructed public hospitals to start providing these services. In South Africa and Tanzania, governments had yet to commit to publicly funded palliative care services.ConclusionThe experiences in these countries suggest that mixing advocacy, communications, and technical assistance can lead to substantial progress for patient access although full inclusion in universal health coverage remained uncertain in all but Rwanda.Copyright © 2022 The Authors. Published by Elsevier Inc. All rights reserved.
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