• J Clin Epidemiol · Sep 2017

    Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 3: patient-reported outcomes can facilitate shared decision-making and guide self-management.

    • Vanessa K Noonan, Anne Lyddiatt, Patrick Ware, Susan B Jaglal, Richard J Riopelle, Clifton O Bingham, Sabrina Figueiredo, Richard Sawatzky, Maria Santana, Susan J Bartlett, and Sara Ahmed.
    • Blusson Spinal Cord Centre, Rick Hansen Institute, 818 West 10th Avenue, Vancouver, British Columbia, Canada V5Z 1M9; Department of Orthopaedics, Faculty of Medicine, University of British Columbia, 3114-910 West 10th Avenue, Vancouver, British Columbia, Canada V5Z 1M9. Electronic address: vnoonan@rickhanseninstitute.org.
    • J Clin Epidemiol. 2017 Sep 1; 89: 125-135.

    BackgroundThere is a shift toward making health care patient centered, whereby patients are part of medical decision-making and take responsibility for managing their health. Patient-reported outcomes (PROs) capture the patient voice and can be used to engage patients in medical decision-making.ObjectiveThe objective of this paper is to present important factors from patients', clinicians', researchers', and decision-makers' perspectives that influence successful adoption of PROs in clinical practice. Factors recommended in this paper were informed by a patient partner.DiscussionBased on themes arising from the Montreal Accord proceedings, we describe factors that influence the adoption of PROs and how PROs can have a positive effect by enhancing communication and providing opportunities to engage patients, carers, and clinicians in care. Consideration of patient factors (e.g., health literacy), family support and networks (e.g., peer-support networks), technology (e.g., e-health), and health care system factors (e.g., resources to implement PROs) is necessary to ensure PROs are successfully adopted. PRO evaluation plans most likely to succeed over the long term are those incorporating PROs identified by patients as necessary for self-management and that coincide with providers' needs for collaboratively developing treatment plans with patients and families.Copyright © 2017 Elsevier Inc. All rights reserved.

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