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Multicenter Study
Establishment of the German Burn Registry - five years of prospective data collection.
- Oliver C Thamm, Rolf Lefering, Martin Bialke, Bert Reichert, Oliver Rennekampff, Marcus Lehnhardt, Paul C Fuchs, Commitee Of The German Burn RegistryGerman Society for Burn Treatment (DGV), Committee of the German Burn Registry, Luisenstrasse 58-59, 10117 Berlin, Germany. Electronic address: verbrennungsregister@verbrennungsmedizin.de., and Ingo Königs.
- Clinic for Plastic and Aesthetic Surgery, Helios Hospital Berlin-Buch, Schwanebecker Chaussee 50, 13125 Berlin, Germany; Clinic for Plastic, and Reconstructive Surgery, Handsurgery, Burn Care Center, University Witten/Herdecke, Cologne-Merheim Medical Center, Ostmerheimer Straße 200, 51109 Cologne, Germany. Electronic address: oliver.thamm@helios-gesundheit.de.
- Burns. 2023 Feb 1; 49 (1): 209219209-219.
BackgroundFrom 1991-2014, all major burn centers of the German-speaking countries participated in a multicenter study in which essentially demographic data were collected. Individual patient data was located at the particular burn centers and only cumulated data were summarized annually for presentation. Retrospective statistical analysis of the entire data collection and identification of subgroups was not possible. In 2015 the German Burn Registry was established for prospective collection of individual patient data as a tool for quality management (QM) and for scientific analyses.MethodsA working group was formed to ensure the development and administration of the registry. From the official start of the German Burn Registry at the beginning of the year 2015 prospective data collection was realized with an individualized, web-based data collection software in a pseudonymized way. Selected data analysis was performed for the first 5 years of data collection. Severely burned adults and all hospitalized children with burn injuries were documented in the registry.ResultsThe German Burn Registry was successfully established. 64 burn divisions have already been registered. 18,891 patients were documented over 5 years, of which 58% where children (<16 years). Mean ABSI Score was 4 (children: 3, adults: 6) with a mortality rate of 3.8.0% (children: 0.2%, adults: 9.3%). Children were hospitalized for an average of 7 days, whereas adults were discharged after 18 days.ConclusionA registry is mandatory for quality assurance in burn medicine, since realization of randomized studies is difficult due to the heterogeneity of burn injuries. The German Burn Registry already is one of the biggest burn registries in Europe. Several scientific projects, based on the registry database, are in working process or have already been published.Copyright © 2022 Elsevier Ltd and ISBI. All rights reserved.
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