• Rev Assoc Med Bras (1992) · Apr 2017

    Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation.

    • Ivy Jungerman, Julia Toyota, Neyller Patriota Montoni, Elma Heitmann Mares Azevedo, Renata Ligia Vieira Guedes, Aline Damascena, Derek Lowe, José Guilherme Vartanian, Simon N Rogers, and Luiz Paulo Kowalski.
    • Department of Radiology and Oncology, Faculdade de Medicina da Universidade de São Paulo (USP), São Paulo, SP, Brazil.
    • Rev Assoc Med Bras (1992). 2017 Apr 1; 63 (4): 311-319.

    Objective:The purpose of this study was to translate, culturally validate and evaluate the Patients Concerns Inventory - Head and Neck (PCI-H&N) in a consecutive series of Brazilian patients.Method:This study included adult patients treated for upper aerodigestive tract (UADT) cancer. The translation and cultural adaptation of the PCI-H&N followed internationally accepted guidelines and included a pretest sample of patients that completed the first Brazilian Portuguese version of the PCI. Use, feasibility and acceptability of the PCI were tested subsequently in a consecutive series of UADT cancer patients that completed the final Brazilian Portuguese version of the PCI and a Brazilian Portuguese version of the University of Washington Quality of Life Questionnaire (UW-QOL). Associations between physical and socio-emotional composite scores from the UW-QOL and the PCI were analyzed.Results:Twenty (20) patients participated in the pretest survey (translation and cultural adaptation process), and 84 patients were analyzed in the cultural validation study. Issues most selected were: fear of cancer returning, dry mouth, chewing/eating, speech/voice/being understood, swallowing, dental health/teeth, anxiety, fatigue/tiredness, taste, and fear of adverse events. The three specialists most selected by the patients for further consultation were speech therapist, dentist and psychologist. Statistically significant relationships between PCI and UW-QOL were found.Conclusion:The translation and cultural adaptation of the PCI into Brazilian Portuguese language was successful, and the results demonstrate its feasibility and usefulness, making this a valuable tool for use among the Brazilian head and neck cancer population.

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