• Rev Assoc Med Bras (1992) · May 2022

    Discussion of the Brazilian neurologists about sudden unexpected death in epilepsy.

    • Amanda Mosini, Ively Guimarães Abdalla, Michele Longoni Calió, Ana Claudia Fiorini, Carla Alessandra Scorza, Maria Alice Susemihl, Josef Finsterer, and Fúlvio Scorza.
    • Associação Brasileira de Epilepsia - São Paulo (SP), Brazil.
    • Rev Assoc Med Bras (1992). 2022 May 1; 68 (5): 675-679.

    ObjectiveThis study aimed to evaluate the concept of health professionals affiliated with the Brazilian League of Epilepsy on whether or not to inform patients about the risk factors related to the occurrence of sudden unexpected death in epilepsy.MethodsA descriptive research of inquiry was conducted with direct survey on the Brazilian neurologist's view, regarding medical behavior in the health area to report or not about the risk of sudden unexpected death in epilepsy. Data collection consisted of a structured questionnaire available online.ResultsThe study population consisted of a sample of 44 Brazilian League of Epilepsy members who answered the questionnaire, of which 25 (56.8%) were men and 19 (43.2%) were women. Among the analyzed questionnaires, 79.5% reported that they were aware of the risk factors for sudden unexpected death in epilepsy and 18.2% admitted not knowing the potential risk factors for sudden unexpected death in epilepsy. Notably, 59.1% of these professionals thought that an early discussion with the patient about sudden unexpected death in epilepsy must be considered. The majority (70%) felt that the neurologist should do this, and 22% believed that the subject should be discussed with psychologists. It was noted that 84.1% of respondents did not discuss or discussed only with some of their patients about the risk factors for sudden unexpected death in epilepsy.ConclusionsThere is a need for encouraging early discussion of sudden unexpected death in epilepsy with epilepsy patients if the patient asks about the risks related to epilepsy and its treatment, when treatment adherence is low, in cases of intractable epilepsy with strong indication for surgical treatment, and when polytherapy is needed.

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