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J Pain Symptom Manage · Sep 2022
Provider Perceptions for Withdrawing Life Sustaining Therapies at a Large Pediatric Hospital.
- Kimberly E Sawyer, Alana T Carpenter, Ryan D Coleman, Sebastian C Tume, Claire A Crawford, and Jessica A Casas.
- St. Jude Children's Research Hospital (K.E.S.), Memphis, Tennessee, USA.
- J Pain Symptom Manage. 2022 Sep 1; 64 (3): e115-e121.
ContextMore than 74% of pediatric deaths occur in an intensive care unit (ICU), with 40% occurring after withdrawal of life-sustaining therapies (WOLST). No needs assessment has described provider needs or suggestions for improving the WOLST process in pediatrics.ObjectivesThis study aims to describe interdisciplinary provider self-reported confidence, needs, and suggestions for improving the WOLST process.MethodsA convergent parallel mixed-methods design was used. An online survey was distributed to providers involved in WOLSTs in a quaternary children's hospital between January and December 2018. The survey assessed providers' self-reported confidence in their role, in providing guidance to families about the WOLST, experiences with the WOLST process, areas for improvement, and symptom management. Kruskal-Wallis testing was used for quantitative data analysis with P values <0.05 considered significant. Analysis was performed with SPSS v27. Qualitative data were thematically analyzed using Atlas.ti.8 and NVivo.ResultsA total of 297 surveys were received (48% survey completion) that consisted of multiple choice, Likert-type, and yes/no questions with options for open-ended responses. Mean provider self-rated confidence was high and varied significantly between disciplines. Qualitative analysis identified four areas for refining communication: 1) between the primary team and family, 2) within the primary team, 3) between the primary team and consulting providers, and 4) logistical challenges.ConclusionsWhile participants' self-rated confidence was high, it varied between disciplines. Participants identified opportunities for improved communication and planning before a WOLST. Future work includes development and implementation of a best practice guideline to address gaps and standardize care delivery.Copyright © 2022 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
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