• Palliative medicine · Jan 2023

    Health and disability care providers' experiences and perspectives on end-of-life care needs of individuals with long-standing physical disability: A qualitative interview study.

    • Irene Belperio, Kim Devery, Deidre D Morgan, Deb Rawlings, Parimala Raghavendra, and Ruth Walker.
    • Disability and Community Inclusion, College of Nursing and Health Sciences, Flinders University, Adelaide, South Australia.
    • Palliat Med. 2023 Jan 1; 37 (1): 131139131-139.

    BackgroundLittle is known about the specific needs and experiences of individuals with long-standing physical disability at end of life.AimTo explore health and disability care providers perspectives and experiences in relation to end-of-life care needs of individuals with long-standing physical disability.DesignQualitative study using reflexive thematic analysis.Setting/ParticipantsSemi-structured interviews were conducted with nine health and disability care providers from two Australian states.ResultsFive themes were constructed from the data: (1) The significance of place. All participants described how the end-of-life care experience was significantly impacted by the place in which dying occurred. (2) Knowing the person and their needs. Knowledge and familiarity with the individual with long-standing disability were seen as invaluable in terms of providing continued high-quality care. (3) Navigating a new care landscape. For disability support workers, struggling to adapt from providing disability support to end-of-life care was difficult. (4) Complexities of family involvement. Past experiences of families within the healthcare system had resultant impacts on care received by the individual with long-standing disability. (5) Being prepared. Participants felt more was needed in terms of end-of-life planning and discussions around end of life for this cohort.ConclusionsThis research highlights a significant lack of continuity of care and problems at the intersection of the disability and health systems when providing end-of-life care for this cohort. Suggested areas for improvement include team approaches to enable continuity of care and dying in place, and a need for knowledge and skills in this area for all stakeholders.

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