• Deborah Feifer, Elizabeth G Broden, Justin N Baker, Joanne Wolfe, and Jennifer Snaman.
• Department of Psychosocial Oncology and Palliative Care (D.F., E.B., J.W., J.S.), Dana-Farber Cancer Institute, Boston, Massachusetts, USA; Division of Quality of Life and Palliative Care, Department of Oncology (J.N.B.), St. Jude Children's Research Hospital, Memphis, Tennessee, USA; Department of Pediatrics (J.W., J.S.), Boston Children's Hospital, Boston, Massachusetts, USA.
• J Pain Symptom Manage. 2023 May 1; 65 (5): e399e407e399-e407.

ContextBereaved parents may have heightened risk for decisional regret; however, little is known about regret early in bereavement.ObjectivesWe characterized decisional regrets endorsed by parents of children who died from cancer within the first two years of their bereavement.MethodsWe analyzed responses from a cross-sectional, dual site study of parents six to 24 months from their child's death. Parents indicated whether they had regrets about decisions made at the end of their child's life (yes/no/I don't know) and elaborated with free text. We used content analysis to identify recurrent categories in parents' responses.ResultsA total of 125 parents of 88 children completed the survey; 123 responded to the decisional regret item and 84 (63%) elaborated with free text. Forty-seven (38%) parents reported decisional regret(s), 61 (50%) indicated no regret(s), and 15 (12%) were unsure. Parental free-text responses related to five categories: treatments, including those pursued and/or not pursued (n = 57), decision-making processes (n = 35), relationships with their child and care team (n = 26), child suffering (n = 10), and end-of-life characteristics (n = 6). The relative frequency of categories was similar in parents with and without decisional regret, but self-blame was more common in responses from parents with decisional regret.ConclusionMany bereaved parents endorse decisional regret in early bereavement. Treatments and decision-making processes were most cited among parents both with and without regret. Identifying factors associated with heightened parental risk of decisional regret using longitudinal study is an important focus of future research.Copyright © 2023 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

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