• Yaara Zisman-Ilani, Shely Khaikin, Margot L Savoy, Anuradha Paranjape, Daniel J Rubin, Regina Jacob, Thomas H Wieringa, John Suarez, Jin Liu, Heather Gardiner, Sarah Bauerle Bass, Victor M Montori, and Laura A Siminoff.
• College of Public Health, Temple University, Philadelphia, Pennsylvania yaara@temple.edu.
• Ann Fam Med. 2023 Mar 1; 21 (2): 112118112-118.

ObjectiveThe extent of shared decision making (SDM) use in the care of Black patients is limited. We explored preferences, needs, and challenges of Black patients to enhance SDM offerings.MethodsWe performed interviews with 32 Black patients receiving type 2 diabetes care in safety-net primary care practices caring predominantly for Black people.ResultsThe following 4 themes emerged: preference for humanistic communication, need to account for the role of family in decision making, need for medical information sharing, and mistrust of clinicians.ConclusionGiven the dearth of research on SDM among ethnic and racial minorities, this study offers patient-perspective recommendations to improve SDM offerings for Black patients in primary care settings. To enhance SDM with Black patients, acknowledgment of the importance of storytelling as a strategy, to place medical information in a context that makes it meaningful and memorable, is recommended. Triadic SDM, in which family members are centrally involved in decision making, is preferred over classical dyadic SDM. There is a need to reconsider the universalism assumption underlying contemporary SDM models and the relevancy of current SDM practices that were developed mostly without the feedback of participants of ethnic, racial, and cultural minorities.Annals "Online First" article.© 2023 Annals of Family Medicine, Inc.

12 keywords...

hide…