• Can J Anaesth · Jul 2023

    Designing a national pediatric critical care database: a Delphi consensus study.

    • Nadia Roumeliotis, Joanne Ramil, Daniel Garros, Fuad Alnaji, Macha Bourdages, Valerie Brule, Karen Dryden-Palmer, Fiona Muttalib, Jessica Nicoll, Michael Sauthier, Srinivas Murthy, and Patricia S Fontela.
    • Department of Pediatrics, Critical Care, CHU Sainte-Justine, University of Montreal, 3175 Chemin de la Cote-Sainte-Catherine, Montreal, QC, H3T 1C5, Canada. nadia.roumeliotis@gmail.com.
    • Can J Anaesth. 2023 Jul 1; 70 (7): 121612251216-1225.

    PurposeWe sought to describe the processes undertaken for the systematic selection and consensus determination of the common data elements for inclusion in a national pediatric critical care database in Canada.MethodsWe conducted a multicentre Delphi consensus study of Canadian pediatric intensive care units (PICUs) participating in the creation of a national database. Participants were PICU health care professionals, allied health professionals, caregivers, and other stakeholders. A dedicated panel group created a baseline survey of data elements based on literature, current PICU databases, and expertise in the field. The survey was then used for a Delphi iterative consensus process over three rounds, conducted from March to June 2021.ResultsOf 86 invited participants, 68 (79%) engaged and agreed to participate as part of an expert panel. Panel participants were sent three rounds of the survey with response rates of 62 (91%), 61 (90%) and 55 (81%), respectively. After three rounds, 72 data elements were included from six domains, mostly reflecting clinical status and complex medical interventions received in the PICU. While race, gender, and home region were included by consensus, variables such as minority status, indigenous status, primary language, and ethnicity were not.ConclusionWe present the methodological framework used to select data elements by consensus for a national pediatric critical care database, with participation from a diverse stakeholder group of experts and caregivers from all PICUs in Canada. The selected core data elements will provide standardized and synthesized data for research, benchmarking, and quality improvement initiatives of critically ill children.© 2023. Canadian Anesthesiologists' Society.

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