• J Pain Symptom Manage · Sep 2023

    Integration of Palliative Care in Hematopoietic Cell Transplant: Pediatric Patient and Parent Needs and Attitudes.

    • Deena R Levine, Rebecca Epperly, Griffin Collins, Aimee C Talleur, Belinda Mandrell, Michele Pritchard, Sarvode MothiSurajSDepartment of Biostatistics (S.S.M., C.L., Z.L.), St. Jude Children's Research Hospital, Memphis, TN., Chen Li, Zhaohua Lu, and Justin N Baker.
    • Division of Quality-of-life and Palliative Care, Department of Oncology (D.R.L., G.C., J.N.B.), St. Jude Children's Research Hospital, Memphis, TN, USA. Electronic address: Deena.Levine@stjude.org.
    • J Pain Symptom Manage. 2023 Sep 1; 66 (3): 248257248-257.

    ContextEarly integration of palliative care (PC) in hematopoietic cell transplantation (HCT) has demonstrated benefits, yet barriers remain, including perceived lack of patient/caregiver receptivity despite no data on attitudes toward PC and limited patient/caregiver reported outcomes in pediatric HCT.ObjectivesThis study aimed to evaluate perceived symptom burden and patient/parent attitudes toward early PC integration in pediatric HCT.MethodsFollowing IRB approval, consent/assent, eligible participants were surveyed at St. Jude Children's Research Hospital including English-speaking patients aged 10-17, 1-month to 1-year from HCT, and their parents/primary-caregivers, as well as parent/primary-caregivers of living HCT recipients ResultsEighty one participants, within one year of HCT, at St. Jude Children's Research Hospital were enrolled including: 36 parents of patientsConclusionOur findings suggest that patient/family receptivity should not be a barrier to early PC in pediatric HCT; obtaining patient reported outcomes is a priority in the setting of high symptom burden; and robust quality-of-life directed care with early PC integration is both indicated and acceptable to patients/caregivers.Copyright © 2023 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

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