• Sang Min Park, Young Jin Kim, Samyong Kim, Jong Soo Choi, Ho-Yeong Lim, Youn Seon Choi, Young Seon Hong, Si-Young Kim, Dae Seog Heo, Ki Moon Kang, Hyun Sik Jeong, Chang Geol Lee, Do Ho Moon, Jin-Young Choi, In Sik Kong, and Young Ho Yun.
• National Cancer Control Research Institute and Hospital, National Cancer Center, Goyang, Gyeonggi, South Korea.
• Support Care Cancer. 2010 Jun 1;18(6):699-706.

Goals Of WorkFamily caregivers play an important role in caring for cancer patients, but the impact of caregivers' unmet needs on the quality of end-of-life (EOL) care they deliver and on their workplace performance are less understood.Patients And MethodsWe identified 1,662 family caregivers of cancer patients who had died at any of 17 hospitals in Korea during 2004. The caregivers answered a telephone questionnaire about needs that were not met when they delivered terminal cancer care and how those unmet their needs affected their workplace performance; they also answered the Quality Care Questionnaire-End of Life (QCQ-EOL).ResultsCompared with caregivers who did not have unmet needs, caregivers who had unmet needs for symptom management, financial support, or community support showed poorer QCQ-EOL scores (P < 0.01). Caregivers who had unmet needs for financial support (adjusted odds ratio (aOR) = 7.55; 95% confidential interval (CI) 3.80-15.00), psychosocial support (aOR = 6.24; 95% CI 2.95-13.05), symptom management (aOR = 3.21; 95% CI 2.26-4.54), community support (aOR = 3.82; 95% CI 2.38-6.11), or religious support (aOR = 4.55; 95% CI 1.84-11.26) were more likely to experience work limitations. Caregivers of patients receiving conventional hospital care were more likely to have unmet needs for symptom management (aOR = 1.21; 95% CI 1.00-1.47), psychosocial support (aOR = 1.99; 95% CI 1.37-2.88), and religious support (aOR = 1.73; 95% CI 1.08-2.78) than those of patients receiving palliative hospice care.ConclusionsCaregivers' unmet needs negatively affected both the quality of EOL care they delivered and their workplace performance. More investment in caregiver support and public policies that meet caregiver needs are needed, and hospice use should be encouraged.

18 keywords...

hide…