• J Palliat Med · Dec 2023

    Development of the Palliative Care Law and Policy GPS to Assess National Policies in Palliative Care.

    • Shelli L Feder, Dena Schulman-Green, Jennifer Huer, Laura Hoffman, Lynette B Martins, Stacie Sinclair, Abbe R Gluck, and Eugene Rusyn.
    • Yale School of Nursing, VA Connecticut Healthcare System, West Haven, Connecticut, USA.
    • J Palliat Med. 2023 Dec 1; 26 (12): 169817011698-1701.

    AbstractBackground: State policy-making to address disparities in access to and quality of palliative care is increasing. Yet, there is no mechanism to systematically assess palliative care policies nationally. Methods: We describe the development of the Palliative Care Law and Policy GPS by the Center to Advance Palliative Care and the Yale Solomon Center for Health Law and Policy. The GPS is an online, searchable repository of national palliative care policies. We developed the GPS by conducting a systematic search of Lexis+, LegiScan, and state health departments for palliative care-related statutes and proposed legislation, categorizing policies into workforce, payment, quality/standards, clinical skill-building, public awareness, telehealth, and pediatric palliative care, and creating an interactive website. Conclusions and Implications: The GPS is a critical tool that can advance palliative care research, practice, and policy. Next steps include the expansion of data from 2010 onward as well as gathering state-level regulations and partially automating search and updating functions.

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