The pandemic has accelerated the data-sharing conversation and patients are increasingly receptive to sharing data, but missteps in this area could undermine public trust. This article outlines public concerns, lessons learned from previous unsuccessful activities, and the potential for secure data environments, which will be vital for the UK to maximise benefits for patients and the NHS.
Niki O'Brien, Saira Ghafur, Peter Howitt, James O'Shaughnessy, and Ara Darzi.
Institute of Global Health Innovation, Imperial College London, London, UK.
Brit J Hosp Med. 2023 Aug 2; 84 (8): 131-3.
AbstractThe pandemic has accelerated the data-sharing conversation and patients are increasingly receptive to sharing data, but missteps in this area could undermine public trust. This article outlines public concerns, lessons learned from previous unsuccessful activities, and the potential for secure data environments, which will be vital for the UK to maximise benefits for patients and the NHS.