• Acad Emerg Med · Dec 2023

    A Qualitative Analysis of Patients' Experiences with an ED Diagnosis of GI Cancer.

    • Alexandra Adams, Sara Heinert, Lauren Sanchez, Alison Karasz, RamosMaria ElenaMEDepartment of Surgery, Montefiore Medical Center/Albert Einstein College of Medicine, New York, New York, USA., Srawani Sarkar, Bruce Rapkin, and Haejin In.
    • Division of Surgical Oncology, Rutgers Cancer Institute, New Brunswick, New Jersey, USA.
    • Acad Emerg Med. 2023 Dec 1; 30 (12): 120112091201-1209.

    ObjectivesOptimally, cancer is diagnosed through periodic screening or detection of early symptoms in primary care settings. However, an estimated 23%-52% of gastrointestinal (GI) cancers are diagnosed in the emergency department (ED). Cancer diagnosed in the ED has been associated with worse clinical and patient-reported outcomes even after adjustment for cancer stage. We sought to explore patients' accounts of patient and health care system factors related to their diagnosis in the ED and their lived experience of receiving a diagnosis in this setting.MethodsPatients with an ED visit during or within 30 days of their GI cancer diagnosis at an urban academic hospital serving a largely disadvantaged population were recruited. Interviews were coded in NVivo 12 and analyzed using a thematic analysis approach.ResultsPatient-reported factors associated with their experiences included denial and avoidance of symptoms, mistrust of the health system, and lack of cancer screening knowledge. Health care system factors included misdiagnosis and delayed access to specialty care or tests. Experiences receiving a cancer diagnosis in the ED were overwhelmingly negative.ConclusionsThis study highlights the unmet needs in identifying and diagnosing patients who ultimately present to the ED for evaluation and eventual diagnosis of cancer. Our results shed light on several modifiable factors, including the need for increased public awareness of the asymptomatic nature of cancer and the importance of cancer screening. Additionally, health care systems modifications beyond the ED are needed to improve access to timely care when symptoms arise.© 2023 The Authors. Academic Emergency Medicine published by Wiley Periodicals LLC on behalf of Society for Academic Emergency Medicine.

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