• Critical care medicine · Jan 2024

    Review

    National ICU Registries as Enablers of Clinical Research and Quality Improvement.

    • SalluhJorge I FJIFD'Or Institute for Research and Education, Rio de Janeiro, Brazil.Post-Graduation Program, Federal University of Rio de Janeiro, Rio de Janeiro, Brazil., Amanda Quintairos, Dave A Dongelmans, Diptesh Aryal, Sean Bagshaw, Abigail Beane, Gaston Burghi, LópezMaria Del Pilar AriasMDPAArgentine Society of Intensive Care (SATI). SATI-Q Program, Buenos Aires, Argentina.Intermediate Care Unit, Hospital de Niños Ricardo Gutierrez, Buenos Aires, Argentina., Stefano Finazzi, Bertrand Guidet, Satoru Hashimoto, Nao Ichihara, Edward Litton, Nazir I Lone, Vrindha Pari, Cornelius Sendagire, VijayaraghavanBharath Kumar TirupakuzhiBKTDepartment of Critical Care Medicine, Apollo Main Hospital, Chennai, India.The George Institute for Global Health, New Delhi, India., Rashan Haniffa, Luigi Pisani, David Pilcher, and Linking of Global Intensive Care (LOGIC) and Japanese Intensive care PAtient Database (JIPAD) Working Group.
    • D'Or Institute for Research and Education, Rio de Janeiro, Brazil.
    • Crit. Care Med. 2024 Jan 1; 52 (1): 125135125-135.

    ObjectivesClinical quality registries (CQRs) have been implemented worldwide by several medical specialties aiming to generate a better characterization of epidemiology, treatments, and outcomes of patients. National ICU registries were created almost 3 decades ago to improve the understanding of case-mix, resource use, and outcomes of critically ill patients. This narrative review describes the challenges, proposed solutions, and evidence generated by National ICU registries as facilitators for research and quality improvement.Data SourcesEnglish language articles were identified in PubMed using phrases related to ICU registries, CQRs, outcomes, and case-mix.Study SelectionOriginal research, review articles, letters, and commentaries, were considered.Data ExtractionData from relevant literature were identified, reviewed, and integrated into a concise narrative review.Data SynthesisCQRs have been implemented worldwide by several medical specialties aiming to generate a better characterization of epidemiology, treatments, and outcomes of patients. National ICU registries were created almost 3 decades ago to improve the understanding of case-mix, resource use, and outcomes of critically ill patients. The initial experience in European countries and in Oceania ensured that through locally generated data, ICUs could assess their performances by using risk-adjusted measures and compare their results through fair and validated benchmarking metrics with other ICUs contributing to the CQR. The accomplishment of these initiatives, coupled with the increasing adoption of information technology, resulted in a broad geographic expansion of CQRs as well as their use in quality improvement studies, clinical trials as well as international comparisons, and benchmarking for ICUs.ConclusionsICU registries have provided increased knowledge of case-mix and outcomes of ICU patients based on real-world data and contributed to improve care delivery through quality improvement initiatives and trials. Recent increases in adoption of new technologies (i.e., cloud-based structures, artificial intelligence, machine learning) will ensure a broader and better use of data for epidemiology, healthcare policies, quality improvement, and clinical trials.Copyright © 2023 by the Society of Critical Care Medicine and Wolters Kluwer Health, Inc. All Rights Reserved.

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