• Burns · Feb 2024

    Multicenter Study

    Outcomes that matter most to burn patients: A national multicentre survey study in the Netherlands.

    • I Spronk, D van Uden, L van Dammen, M E van Baar, M Nieuwenhuis, A Pijpe, I Visser, C van Schie, P van Zuijlen, T Haanstra, C A Lansdorp, and Dutch Burn Care, Education & Research group.
    • Erasmus MC University Medical Centre Rotterdam, Department of Public Health, Rotterdam, the Netherlands; Association of Dutch Burn Centres, Maasstad Hospital, Rotterdam, the Netherlands; Dutch Burns Foundation, Beverwijk, the Netherlands. Electronic address: SpronkI@maasstadziekenhuis.nl.
    • Burns. 2024 Feb 1; 50 (1): 314031-40.

    BackgroundThe use of patient-reported outcomes to improve burn care increases. Little is known on burn patients' views on what outcomes are most important, and about preferences regarding online Patient Reported Outcome Measures (PROMs). Therefore, this study assessed what outcomes matter most to patients, and gained insights into patient preferences towards the use of online PROMs.MethodsAdult patients (≥18 years old), 3-36 months after injury completed a survey measuring importance of outcomes, separately for three time periods: during admission, short-term (<6 months) and long-term (6-24 months) after burn injury. Both open and closed-ended questions were used. Furthermore, preferences regarding the use of patient-reported outcome measures in burn care were queried.ResultsA total of 140 patients were included (response rate: 27%). 'Not having pain' and 'good wound healing' were identified as very important outcomes. Also, 'physical functioning at pre-injury level', 'being independent' and 'taking care of yourself' were considered very important outcomes. The top-ten of most important outcomes largely overlapped in all three time periods. Most patients (84%) had no problems with online questionnaires, and many (67%) indicated that it should take up to 15 minutes. Patients' opinions differed widely on the preferred frequency of follow-up.ConclusionsNot having pain and good wound healing were considered very important during the whole recovery of burns; in addition, physical functioning at pre-injury level, being independent, and taking care of yourself were deemed very important in the short and long-term. These outcomes are recommended to be used in burn care and research, although careful selection of outcomes remains crucial as patients prefer online questionnaires up to 15 minutes.Copyright © 2023 The Authors. Published by Elsevier Ltd.. All rights reserved.

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