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Palliative medicine · Jan 2024
ReviewPatient and families' perspectives on telepalliative care: A systematic integrative review.
- Eithne Hayes Bauer, Anders Nikolai Ørsted Schultz, Frans Brandt, Anthony C Smith, Georg Bollig, and Karin Brochstedt Dieperink.
- Institute of Regional Health Research, Hospital Soenderjylland, University of Southern Denmark, Odense, Denmark.
- Palliat Med. 2024 Jan 1; 38 (1): 425642-56.
BackgroundTelepalliative care is increasingly used in palliative care, but has yet to be examined from a patient and family perspective. A synthesis of evidence may provide knowledge on how to plan and provide telepalliative care that caters specifically to patients and families' needs.ObjectiveTo synthesise evidence on patients and families' perspectives on telepalliative care.DesignA systematic integrative review (PROSPERO #CRD42022301206) reported in accordance with PRISMA 2020 guidelines. Inclusion criteria; primary peer-reviewed studies published 2011-2022, patient and family perspective, >18 years, telepalliative care and English/Danish language. Quality was appraised using the mixed-methods appraisal tool, version 2020. Guided by Toronto and Remington, data were extracted, thematically analysed and synthesised.Data SourcesMEDLINE, EMBASE, PsycINFO and CINAHL were searched in March 2022 and updated in February 2023.ResultsForty-four studies were included. Analysis revealed five themes; the effect of the Covid-19 pandemic on telepalliative care, adding value for patients and families, synchronous and asynchronous telepalliative care, the integration of telepalliative care with other services and the tailoring and timing of telepalliative care.ConclusionEnhanced access to care and convenience, as attributes of telepalliative care, are highly valued. Patients and families have varying needs during the illness trajectory that may be addressed by early integration of telepalliative care based on models of care that are flexible and combine synchronous and asynchronous solutions. Further research should examine telepalliative care in a post-pandemic context, use of models of care and identify meaningful outcome measures from patient and family perspectives for evaluation of telepalliative care.
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