• Clin Med (Lond) · Apr 2016

    What does quality healthcare look like to adolescents and young adults? Ask the experts!

    • Melinda Edwards, Caron Lawson, Safiyyah Rahman, Kerry Conley, Hannah Phillips, and Rebecca Uings.
    • Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK melinda.edwards@gstt.nhs.uk.
    • Clin Med (Lond). 2016 Apr 1; 16 (2): 146151146-51.

    AbstractIt is widely recognised that developmentally appropriate services for adolescents and young people improve both healthcare experience and health outcomes. However, there is limited evidence of using young people's expertise to evaluate services, or of young people participating in service developments or design to meet their healthcare needs. This report covers both the process and outcomes of a collaborative project with a group of young people (aged 17-25 years) who are 'experts by experience'. We used qualitative mixed methodology to derive themes from narrative accounts of these young people's healthcare experiences to develop an assessment framework that they identified as being relevant to evaluating services. Informing young people about other assessment measures currently in use (including the Department of Health's You're Welcome quality criteria) enabled the group to further develop their views and refine their proposed assessment framework. This paper is co-authored with young people, enabling them to directly voice their views about healthcare services. Reflections on this process and recommendations for working more collaboratively with young people to evaluate healthcare services are also given.© 2016 Royal College of Physicians.

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