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J Soc Work End Life Palliat Care · Jan 2012
Palliative care in the pediatric ICU: challenges and opportunities for family-centered practice.
- Ardith Doorenbos, Taryn Lindhorst, Helene Starks, Eugene Aisenberg, J Randall Curtis, and Ross Hays.
- Department of Biobehavioral Nursing & Health Systems, School of Nursing, University of Washington, Seattle, Washington, USA. doorenbo@u.washington.edu
- J Soc Work End Life Palliat Care. 2012 Jan 1;8(4):297-315.
AbstractThe culture of pediatric intensive care units (PICUs) is focused on curative or life-prolonging treatments for seriously ill children. We present empirically-based approaches to family-centered palliative care that can be applied in PICUs. Palliative care in these settings is framed by larger issues related to the context of care in PICUs, the stressors experienced by families, and challenges to palliative care philosophy within this environment. Innovations from research on family-centered communication practices in adult ICU settings provide a framework for development of palliative care in PICUs and suggest avenues for social work support of critically ill children and their families.
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