• Semin Respir Crit Care Med · Jul 2024

    Five Questions to Help Prompt End-of-Life Planning in Neuromuscular Disease.

    • Benjamin J Lipanot and Gabriel Bosslet.
    • Division of Pulmonary, Critical Care, Allergy, and Occupational Medicine, Department of Medicine, Indiana University School of Medicine, Indianapolis, Indiana.
    • Semin Respir Crit Care Med. 2024 Jul 19.

    AbstractPatients with neuromuscular disease are living longer lives but continue to have significant and often unpredictable morbidity and mortality. End-of-life planning for these patients is thus an essential part of their medical care. This planning should include the following topics: health care surrogates, swallowing and nutrition, daytime respiratory support, and all aspects of when end of life is near. Adult-onset and early-onset diseases may require different approaches to these topics. All patients with neuromuscular disease will benefit from these discussions to best reach patient-centered goals. We present health care providers these five questions and explanations as a guide.Thieme. All rights reserved.

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