• Xiao-Yang Hu, Ben Young, Miriam Santer, Hazel Everitt, Jen Pearson, Hannah Bowers, Michael Moore, Paul Little, Tamar Pincus, Cathy Price, Tom Robson, Clara de Barros, Jane Loewy, Jenny Magee, and GeraghtyAdam W AAWAPrimary Care Research Centre, School of Primary Care, Population Sciences & Medical Education, Faculty of Medicine, University of Southampton, Southampton, United Kingdom..
• Primary Care Research Centre, School of Primary Care, Population Sciences & Medical Education, Faculty of Medicine, University of Southampton, Southampton, United Kingdom.
• Pain. 2024 Sep 12.

AbstractSupporting behavioural self-management is increasingly important in the care for chronic widespread pain (CWP), including fibromyalgia. Understanding peoples' experiences of these interventions may elucidate processes and mechanisms that lead to or hinder their intended impact. We conducted a systematic review and thematic synthesis of qualitative studies exploring peoples' experiences of self-management interventions for CWP, including fibromyalgia. MEDLINE, Embase, PsycINFO, CINAHL, and Web of Science were searched. Primary qualitative or mixed-methods studies were included if they explored people's self-management intervention experiences for their CWP, including fibromyalgia. Screening, data extraction, and critical appraisal were conducted by 2 reviewers. Data analysis was conducted through thematic synthesis. Twenty-three studies were included, mostly were rated as high or moderate quality. We developed 4 analytic themes: A multifaceted experience of the intervention, potential for transformative experience of group cohesion, a new outlook, and striving for change after the loss of support. Broadly, personalisation was perceived as beneficial and people experienced a range of emotional experiences. These appeared to support positive behavioural and cognitive changes. For most, group activities promoted acceptance and support, fostering new perspectives and improved self-management, although some found aspects of group contexts challenging. Lack of on-going support after interventions led to challenges in applying behavioural strategies, and some struggled without social support from the group. The experiences of self-management interventions for CWP reflect a complex, multifaceted process. Although many reported positive experiences, addressing issues with integration of physical activity, group dynamics and postintervention support may improve effectiveness for a broader range of people.Copyright © 2024 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the International Association for the Study of Pain.

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