• Lincoln M Tracy, Elizabeth Capell, Heather J Cleland, Dale W Edgar, Yvonne Singer, Warwick J Teague, and Belinda J Gabbe.
• School of Public Health and Preventive Medicine, Monash University, Australia. Electronic address: lincoln.tracy@monash.edu.
• Burns. 2024 Oct 28; 51 (1): 107304107304.

BackgroundCollecting patient-reported outcome measures (PROMs) has been a longstanding priority for the Burns Registry of Australia and New Zealand (BRANZ). An earlier pilot of hospital-led PROM collection encountered low participation rates and high loss to follow-up, indicating consideration for an alternative model was warranted.AimsTo establish the feasibility of implementing centralised long-term PROM collection within the BRANZ.MethodsTwo burn services participated in this prospective, longitudinal pilot. PROMs were collected from patients admitted to the services between January and December 2021 who survived to discharge. Follow-up occurred via telephone or online self-completion at three, six, and 12 months post-injury using burn-specific and generic health-related quality-of-life measures.ResultsThere were 450 patients (423 adult patients [≥ 16 years] and 27 paediatric patients [< 16 years]) who could be contacted and agreed to participate in the follow-ups. Most patients initially opted for telephone rather than online self-completion (n = 305, 67.5 %). No key sociodemographic or injury event factors were associated with specifically opting for online self-completion. The follow-up rates were 81.1 % at three months, 81.9 % at six months, and 77.3 % at 12 months. Data missingness was low (i.e., < 2 %) for all instrument items, excluding the visual analogue scale scores of the 5-Level EuroQoL 5 Dimensions Questionnaire and the two paediatric burn-specific measures.ConclusionsCollecting PROMs from burns patients in the first 12 months after injury via a centralised approach was shown to be feasible, with higher participation rates and low missingness.Copyright © 2024 The Authors. Published by Elsevier Ltd.. All rights reserved.

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