• Am J Hosp Palliat Care · Feb 2013

    Parent's perceptions of health care providers actions around child ICU death: what helped, what did not.

    • Dorothy Brooten, Joanne M Youngblut, Lynn Seagrave, Carmen Caicedo, Dawn Hawthorne, Ivette Hidalgo, and Rosa Roche.
    • Florida International University College of Nursing & Health Sciences, Miami, FL 33199, USA. brooten@fiu.edu
    • Am J Hosp Palliat Care. 2013 Feb 1;30(1):40-9.

    PurposeTo describe parents' perspectives of health care provider actions that helped or did not around the time of infant/child's intensive care unit (ICU) death. Semistructured interviews with 63 parents (Black, White, and Hispanic) 7 months post infant/child death were audio-recorded, transcribed, analyzed, and themes identified.FindingsWhat helped most: compassionate, sensitive staff; understandable explanations of infant's/child's condition; experienced, competent nurses; providers did everything to help infant/child; and parents' involvement in care decisions. What did not help: insensitive, nonsupportive staff; conflict between providers and parents; communication problems around the death; inexperienced nurses and doctors; parents not understanding child's disease, care, complications.ConclusionsCompassionate, sensitive staff and understandable explanations of children's conditions were most helpful; insensitive, nonsupportive staff least helpful by gender, racial group, or care setting. Conflict between providers and parents was most problematic for minority parents and mothers.

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