• Health Expect · Mar 2011

    Health professionals, patients and chronic illness policy: a qualitative study.

    • Laurann Yen, James Gillespie, Yun-Hee Jeon Rn, Marjan Kljakovic, Jo Anne Brien, Stephen Jan, Elin Lehnbom, Carmen Pearce-Brown, and Tim Usherwood.
    • Menzies Centre for Health Policy, The Australian National University, Acton, ACT, Westmead, NSW, Austalia. laurann.yen@anu.edu.au
    • Health Expect. 2011 Mar 1;14(1):10-20.

    Background And ObjectiveThis study investigates health professionals' reactions to patients' perceptions of health issues - a little-researched topic vital to the reform of the care of chronic illness.MethodsFocus groups were undertaken with doctors, nurses, allied health staff and pharmacists (n = 88) in two Australian urban regions. The focus groups explored responses to patient experiences of chronic illness (COPD, Diabetes, CHF) obtained in an earlier qualitative study. Content analysis was undertaken of the transcripts assisted by NVivo7 software.ResultsHealth professionals and patients agreed on general themes: that competing demands in self-management, financial pressure and co-morbidity were problems for people with chronic illness. However where patients and carers focused on their personal challenges, health professionals often saw the patient experience as a series of failures relating to compliance or service fragmentation. Some saw this as a result of individual shortcomings. Most identified structural and attitudinal issues. All saw the prime solution as additional resources for their own activities. Fee for service providers (mainly doctors) sought increased remuneration; salaried professionals (mainly nurses and allied health professionals) sought to increase capacity within their professional group.ConclusionsProfessionals focus on their own resources and the behaviour of other professionals to improve management of chronic illness. They did not factor information from patient experience into their views about systems improvement. This inability to identify solutions beyond their professional sphere highlights the limitations of an over-reliance on the perspectives of health professionals. The views of patients and carers must find a stronger voice in health policy.© 2010 The Authors. Health Expectations © 2010 Blackwell Publishing Ltd.

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