• Am J Hosp Palliat Care · Jun 2012

    Palliative care and support for persons with HIV/AIDS in 7 African countries: implementation experience and future priorities.

    • Carla S Alexander, Peter Memiah, Yvonne B Henley, Angela Kaiza-Kangalawe, Anna Joyce Shumbusho, Michael Obiefune, Victor Enejoh, Winifred Stanis-Ezeobi, Charity Eze, Ehekhaye Odion, Donald Akpenna, Amana Effiong, Kenneth Miriti, Samson Aduda, John Oko, Gebremedhin D Melaku, Cyprien Baribwira, Hassina Umutesi, Mope Shimabale, Emmanuel Mugisa, and Anthony Amoroso.
    • University of Maryland School of Medicine, Institute of Human Virology, 29 S Greene Street, Baltimore, MD 21201, USA. calexand@medicine.umaryland.edu
    • Am J Hosp Palliat Care. 2012 Jun 1;29(4):279-85.

    AbstractTo combat morbidity and mortality from the worldwide epidemic of the human immunodeficiency virus (HIV), the United States Congress implemented a President's Emergency Plan for AIDS Relief (PEPFAR) in 30 resource-limited countries to integrate combination antiretroviral therapy (ART) for both prevention and cure. Over 35% of eligible persons have been successfully treated. Initial legislation cited palliative care as an essential aspect of this plan but overall health strengthening became critical to sustainability of programming and funding priorities shifted to assure staffing for care delivery sites; laboratory and pharmaceutical infrastructure; data collection and reporting; and financial management as individual countries are being encouraged to assume control of in-country funding. Given infrastructure requisites, individual care delivery beyond ART management alone has received minimal funding yet care remains necessary for durable viral suppression and overall quality of life for individuals. Technical assistance staff of one implementing partner representing seven African countries met to clarify domains of palliative care compared with the substituted term "care and support" to understand potential gaps in on-going HIV care. They prioritized care needs as: 1) mental health (depression and other mood disorders); 2) communication skills (age-appropriate disclosure of HIV status); 3) support of care-providers (stress management for sustainability of a skilled HIV workforce); 4) Tied Priorities: symptom management in opportunistic infections; end-of-life care; spiritual history-taking; and 5) Tied Priorities: attention to grief-related needs of patients, their families and staff; and management of HIV co-morbidities. This process can inform health policy as funding transitions to new priorities.

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