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- Sandra Morton-Nance and Tim Schafer.
- Mid Essex Hospital Services NHS Trust, Broomfield Hospital, Chelmsford. sandra.mortonnance@meht.nhs.uk
- Nurs Stand. 2012 Sep 5;27(1):40-7.
AimTo explore the experiences of learning disability and district nurses caring for people with a learning disability at the end of their lives.MethodA small-scale semi-structured qualitative study involving interviews was carried out to explore the experiences of healthcare professionals from two specialist healthcare settings.FindingsHealthcare professionals felt that formal guidelines and support were needed in this complex area. The study also revealed that successful provision of palliative care for people with a learning disability requires a person-centred approach.ConclusionModifications to existing palliative care services, involving joint working, improved co-ordination and reasonable adjustments, is recommended. This aims to address any inequalities in care provision for people with a learning disability who are at the end of their lives.
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