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Am J Hosp Palliat Care · Sep 2011
A spider in the web: role of the palliative care nurse specialist in Uganda--an ethnographic field study.
- Christiane Schaepe, Ann-Mari Campbell, and Ingrid Bolmsjö.
- Lund University, Malmö, Sweden. Christiane.Schaepe@gmail.com
- Am J Hosp Palliat Care. 2011 Sep 1;28(6):403-11.
BackgroundPalliative care is not a priority in developing countries. Hospice Africa Uganda (HAU), where nurses complete a course in clinical palliative care, is considered a model for other African countries.AimTo explore the role of the palliative care nurse specialist (PCNS) in Uganda.MethodsThis ethnographic field study uses observations, interviews, and group interviews.ParticipantsIn total, 20 participants are included in this study.ResultThe role of the palliative care nurse specialist is multifaceted. Beyond prescribing drugs, their role is to deliver holistic care. They encounter numerous challenges in their work, but they also have the possibility to improve the quality of the patient's life.
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