• Palliative medicine · Sep 2010

    Review

    Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008).

    • L Funk, Ki Stajduhar, C Toye, S Aoun, Ge Grande, and Cj Todd.
    • Centre on Aging, University of Victoria, British Columbia, Canada. lmfunk@uvic.ca
    • Palliat Med. 2010 Sep 1;24(6):594-607.

    AbstractFamily caregivers are crucial for supporting home death. We reviewed published qualitative research on home-based family caregiving at end of life (1998-2008), synthesizing key findings and identifying gaps where additional research is needed. Multiple databases were searched and abstracts reviewed for a focus on family caregiving and palliative care; full articles were reviewed to extract data for this review. In total, 105 articles were included. Findings are presented in the following areas: the caregiving experience and contextual features; supporting family caregivers at end of life; caregiving roles and decision-making; and rewards, meaning and coping. We noted a lack of definitional clarity; a reliance on interview methods and descriptive, thematic analyses, and a relative lack of diversity of patient conditions. Research needs are identified in several areas, including the bereavement experience, caregiver ambivalence, access to services, caregiver meaning-making, and relational and contextual influences on family caregiving at end of life.

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