• Joel Stein, Marni Hillinger, Cait Clancy, and Lauri Bishop.
• Department of Rehabilitation and Regenerative Medicine, Columbia University College of Physicians and Surgeons , New York, NY , USA .
• Disabil Rehabil. 2013 Oct 1;35(21):1842-7.

PurposeSexual dysfunction is common after stroke, but is frequently not addressed by healthcare providers. The aim of this study was to examine patient preferences for counseling related to sexuality post-stroke.MethodTwo hundred and sixty-eight patients from a stroke registry were provided an anonymous paper or online survey. Thirty-eight patients responded and completed the survey. The survey included demographic information, and scales of sexual dysfunction, fatigue, depression and functional independence. In addition, we queried subjects about stroke-related sexual dysfunction and their preferences for counseling and education materials.ResultsMost respondents (71%) identified sexuality as a moderately to very important issue in their post-stroke rehabilitation. Sexual dysfunction was common, with 47% of respondents indicating that their sexual function had declined since the stroke. Eighty-one percent reported receiving insufficient information about sexuality post-stroke, and the majority (60%) expressed a preference for receiving counseling regarding sexuality from a physician. A substantial portion (26.5%) of patients wanted to receive counseling prior to discharge from a hospital or rehabilitation center, with 71% wishing to receive counseling within 1 year post-stroke.ConclusionsMany stroke survivors experience sexual dysfunction and indicate a desire for additional information and counseling from healthcare providers. Preferences regarding the timing of such counseling vary, creating challenges for optimizing the delivery of this care. IMPLICATIONS FOR STROKE REHABILITATION: Sexual dysfunction is common after stroke, but is frequently not addressed by healthcare providers. Many stroke survivors experience sexual dysfunction and indicate a desire for additional information and counseling from healthcare providers. Most stroke survivors identify sexuality as an important issue in their post-stroke rehabilitation. Exploring individual stroke survivor counseling preferences periodically over the course of recovery may be a useful strategy for delivering the desired information at the most appropriate time.

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