• Anna Thit Johnsen, Morten Aagaard Petersen, Lise Pedersen, Lise Jul Houmann, and Mogens Groenvold.
• The Research Unit, Department of Palliative Medicine, Bispebjerg Hospital 20D, Copenhagen, Denmark. ajoh0005@bbh.regionh.dk
• Psychooncology. 2013 Aug 1;22(8):1724-30.

ObjectivesThe aim of the study was to investigate the adequacy of help delivered by the healthcare system for 12 symptoms/problems in a national, randomly selected sample of advanced cancer patients in Denmark.MethodsAdvanced cancer patients (n = 1630) from 54 hospital departments across Denmark received the 3-Levels-of-Needs Questionnaire (3LNQ). The 3LNQ measures 'problem burden', the degree to which a symptom or problem is perceived as a problem, and 'felt need', whether the patient receives adequate help. Prevalences were calculated for 'problems' (at least 'a little' of a problem), 'moderate/severe problems' (at least 'quite a bit' of a problem) and 'felt need' (inadequate help or no help despite wanting it).ResultsIn total, 977 (60%) patients participated. The most frequent 'problems' were fatigue (73%; 'moderate/severe' 36%) and limitations doing physical activities (65%; 'moderate/severe' 36%). For the 12 symptoms/problems assessed the prevalence of 'felt need' was 11-35%. Of the patients who had received help, 34-74% viewed the help as inadequate. Of those who had not received help, 48-78% wished for help.ConclusionAdvanced cancer patients are not receiving the help they need. Large proportions of patients were burdened by symptoms/problems. Of those who had received help, many viewed it as inadequate. Better symptom/problem identification and management is warranted for advanced cancer patients.Copyright © 2012 John Wiley & Sons, Ltd.

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