• Mary Ellen Macdonald, Stephen Liben, Franco A Carnevale, and S Robin Cohen.
• Insituttes of Health Research New Emerging Team: Family Caregiving in Palliative and End-of-life Care, Montreal, Canada. mary.macdonald@mcgill.ca
• J Child Health Care. 2008 Jun 1;12(2):92-105.

AbstractBrain death is a medical, legal and cultural category constructed to fill an important need created by evolving medical technologies and practices. However, managing life and death via organ transplants and brain death criteria is not without controversy; there remains much confusion and ambivalence in both lay and medical populations regarding both organ donation and the diagnostic category of brain death. By way of a case study of cranial trauma taken from a larger study of bereaved parents, this article discusses how, from a parent's perspective, brain death and organ donation are neither morally nor medically straightforward concepts. The case study presented in this article demonstrates the necessity for more research and clinical training in communication issues regarding brain death and end-of-life care with families in critical care situations.

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