• Phys Med Rehabil Clin N Am · Nov 2012

    Review

    Using palliative care in progressive neuromuscular disease to maximize quality of life.

    • Gregory T Carter, Nanette C Joyce, Allison L Abresch, Amanda E Smith, and Gregg K VandeKeift.
    • Department of Physical Medicine and Rehabilitation, University of California at Davis, Sacramento, CA 95817, USA. gtcarter@uw.edu
    • Phys Med Rehabil Clin N Am. 2012 Nov 1;23(4):903-9.

    AbstractThis article discusses the role of palliative care in the treatment pathway of patients with progressive neuromuscular disease (NDM), including amyotrophic lateral sclerosis and Duchenne muscular dystrophy (DMD). People with severe NMDs like DMD are now living much longer, well in to adulthood. This makes them suitable for the medical model of palliative care. Yet palliative medicine is a new area, especially for "adults" with DMD. Strategies for identifying the most effective modalities to alleviate suffering in patients with an NMD receiving palliative services and creating best practice standards in pain and symptom management for this patient population are discussed.Copyright © 2012 Elsevier Inc. All rights reserved.

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