• Qual Life Res · May 2012

    Psychometric properties of instruments to measure the quality of end-of-life care and dying for long-term care residents with dementia.

    • Mirjam C van Soest-Poortvliet, Jenny T van der Steen, Sheryl Zimmerman, Lauren W Cohen, Maartje S Klapwijk, Mirjam Bezemer, Wilco P Achterberg, Dirk L Knol, Miel W Ribbe, and Henrica C W de Vet.
    • Department of Nursing Home Medicine, EMGO Institute for Health and Care Research, Amsterdam, The Netherlands. m.vansoest@vumc.nl
    • Qual Life Res. 2012 May 1;21(4):671-84.

    PurposeQuality of care for long-term care (LTC) residents with dementia at the end-of-life is often evaluated using standardized instruments that were not developed for or thoroughly tested in this population. Given the importance of using appropriate instruments to evaluate the quality of care (QOC) and quality of dying (QOD) in LTC, we compared the validity and reliability of ten available instruments commonly used for these purposes.MethodsWe performed prospective observations and retrospective interviews and surveys of family (n = 70) and professionals (n = 103) of LTC decedents with dementia in the Netherlands.ResultsInstruments within the constructs QOC and QOD were highly correlated, and showed moderate to high correlation with overall assessments of QOC and QOD. Prospective and retrospective ratings using the same instruments differed little. Concordance between family and professional scores was low. Cronbach's alpha was mostly adequate. The EOLD-CAD showed good fit with pre-assumed factor structures. The EOLD-SWC and FPCS appear most valid and reliable for measuring QOC, and the EOLD-CAD and MSSE for measuring QOD. The POS performed worst in this population.ConclusionsOur comparative study of psychometric properties of instruments allows for informed selection of QOC and QOD measures for LTC residents with dementia.

      Pubmed     Full text   Copy Citation     Plaintext  

      Add institutional full text...

    Notes

     
    Knowledge, pearl, summary or comment to share?
    300 characters remaining
    help        
    You can also include formatting, links, images and footnotes in your notes
    • Simple formatting can be added to notes, such as *italics*, _underline_ or **bold**.
    • Superscript can be denoted by <sup>text</sup> and subscript <sub>text</sub>.
    • Numbered or bulleted lists can be created using either numbered lines 1. 2. 3., hyphens - or asterisks *.
    • Links can be included with: [my link to pubmed](http://pubmed.com)
    • Images can be included with: ![alt text](https://bestmedicaljournal.com/study_graph.jpg "Image Title Text")
    • For footnotes use [^1](This is a footnote.) inline.
    • Or use an inline reference [^1] to refer to a longer footnote elseweher in the document [^1]: This is a long footnote..

    hide…