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- Mareeni Raymond, Alex Warner, Nathan Davies, Steve Iliffe, Jill Manthorpe, and Sam Ahmedzhai.
- University College London, UK.
- Dementia (London). 2014 Jan 1;13(1):96-110.
AbstractThe experience of being a carer of a person with dementia at the end of life is expressed in these 12 accounts. This is a synthesis of the concerns and challenges for carers at the end of life. These accounts are often insightful and provide several views of carers' and professionals' experience. Having a close relationship as a carer gives a unique and poignant view. What emerges from this review is a range of perspectives that provide contrasting views of the heterogeneity of carers and professionals. This may be helpful for professionals and policy makers to consider when planning end-of-life care strategies for people with dementia and insights drawn from hearing directly from carers may be powerful learning tools.
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