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J Soc Work End Life Palliat Care · Jan 2013
Psychosocial care for the caregivers of primary malignant brain tumor patients.
- Maria Wasner, Piret Paal, and Gian Domenico Borasio.
- Interdisciplinary Center for Palliative Medicine, University Hospital Grosshadern, Munich, Germany. maria.wasner@med.uni-muenchen.de
- J Soc Work End Life Palliat Care. 2013 Jan 1; 9 (1): 74-95.
AbstractDespite clinical experience that suggests a high burden of care among relatives of individuals with a primary malignant brain tumor (PMBT), little is known about their actual needs. In this study, the caregivers' personal experiences, quality of life, burden of care, and psychological well-being were examined. Fifty-nine percent did not receive any financial aid for home care, 33% had increased risk for psychosomatic problems, 45% had anxiety, and 33% increased depression levels. The caregiver's quality of life was most strongly affected by the burden of care (p < .001) and the patient's mental state (p < .03). To improve the situation, empathetic professionals and an early implementation of palliative care and social work are required.
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