• Helena Gauffin, Anne-Marie Landtblom, and Lena Räty.
• Division of Neurology, Medical Faculty/IKE, Linköping University, Linköping, Sweden. helena.gauffin@lio.se
• Epilepsy Behav. 2010 Apr 1; 17 (4): 520-4.

ObjectiveIt is not clear how the psychosocial well-being of young people with epilepsy is affected by growing up with the condition. We studied self-esteem and sense of coherence in a group of young adults with epilepsy and compared the results with those obtained 5 years earlier.MethodsThe participants (n = 97) answered questionnaires regarding self-esteem, sense of coherence, and medical characteristics.ResultsSelf-esteem and sense of coherence both decreased during the 5-year study period. Self-esteem was correlated to epilepsy-related variables. Participants who were seizure free scored higher on sense of coherence, but there was no association between seizure frequency and sense of coherence among participants who still experienced seizures.ConclusionWe found that there was a decline in both sense of coherence and self-esteem over time for young adults with epilepsy. Growing up with epilepsy can lead to impairment of sense of coherence. Sense of coherence does not significantly correlate with epilepsy-related factors, but mirrors the phenomenon of epilepsy. Self-esteem is associated with such epilepsy-related factors as seizure frequency.Copyright (c) 2010 Elsevier Inc. All rights reserved.

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