• World J Pediatr · Nov 2013

    Psychological, cognitive and maternal stress assessment in children with primary ciliary dyskinesia.

    • Marco Carotenuto, Maria Esposito, Francesca Di Pasquale, Sara De Stefano, and Francesca Santamaria.
    • Clinic, Department of Mental and Physical Health, and Preventive Medicine, Second University of Naples, Naples, Italy.
    • World J Pediatr. 2013 Nov 1; 9 (4): 312-7.

    BackgroundPrimary ciliary dyskinesia (PCD) is a rare disorder due to structure and functional abnormalities of respiratory cilia. There are no reports on the behavioral and psychological aspects of children and adolescents with PCD. This study was undertaken to assess the cognitive and behavioural characteristics, and the parental stress of a population of school-aged children with PCD.MethodsTen PCD and 34 healthy school-aged children underwent Wechsler Intelligence Scale for Children-III edition, Child Behavior Check-List questionnaire (CBCL), Parenting Stress Index-Short Form tests in order to perform a behavioural and psychological evaluation.ResultsPCD children showed significant behavioral and social competent problems in CBCL scale than control children, in particular with regard to internalizing problems score (P<0.001). Parental distress, parent-child interaction and total stress in the mothers of PCD patients were higher than those in the controls' parents (P<0.001).ConclusionOur findings pinpoint the importance of specific psychological support in the clinical management of children with PCD.

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