• J Pain Symptom Manage · Jan 2014

    Comparative Study

    How to measure the international development of palliative care? A critique and discussion of current approaches.

    • Martin Loucka, Sheila Payne, Sarah Brearley, and EURO IMPACT.
    • The International Observatory on End-of-Life Care, Lancaster University, Lancaster, United Kingdom. Electronic address: m.loucka@lancaster.ac.uk.
    • J Pain Symptom Manage. 2014 Jan 1;47(1):154-65.

    ContextA number of research projects have been conducted that aim to gather data on the international development of palliative care. These data are important for policy makers and palliative care advocates.ObjectivesThe aim of this article was to provide a critical comparative analysis of methodological approaches used to assess the development and status of palliative care services and infrastructure at an international level.MethodsA selective literature review that focused on the methodological features of eight identified reports was undertaken.ResultsReviewed reports were found to differ in adopted methodologies and provided uneven amounts of methodological information. Five major methodological limitations were identified (lack of theory, use of experts as source of information, grey literature, difficulties in ranking, and the problematic nature of data on service provision). A set of recommendations on how to deal with these issues in future research is provided.ConclusionMeasuring the international development of palliative care is a difficult and challenging task. The results of this study could be used to improve the validity of future research in this field.Copyright © 2014 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.

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