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- Joan M Marston.
- International Children's Palliative Care Network, Bloemfontein, South Africa. Electronic address: joan.marston@icpcn.co.za.
- J Pain Symptom Manage. 2015 Sep 1; 50 (3): 424-7.
AbstractThe concept of "ubuntu," a Nguni word, is found in many southern African cultures and means that we are part of all humanity and we are who we are through our interconnectedness with others. Children with life-limiting conditions often become isolated and take on a new identity in the eyes of others, linked to their illness and treatment. Terms that are used can dehumanize the child. The concept of ubuntu can help the child, the family, and the community to ensure the child remains connected to society. Programs providing palliative care for children often say they feel isolated; ubuntu principles are relevant to effective network development.Copyright © 2015 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
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