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Comparative Study
Death Rituals Reported by White, Black, and Hispanic Parents Following the ICU Death of an Infant or Child.
- Dorothy Brooten, JoAnne M Youngblut, Donna Charles, Rosa Roche, Ivette Hidalgo, and Fatima Malkawi.
- Florida International University Nicole Wertheim College of Nursing & Health Sciences, Miami, FL. Electronic address: brooten@fiu.edu.
- J Pediatr Nurs. 2016 Mar 1; 31 (2): 132-40.
UnlabelledTo examine rituals (disposing remains, wakes, funerals/burials, celebrations) of White, Black, Hispanic parents post ICU infant/child death.Design And MethodsQualitative design, 63 parents completed English or Spanish semi-structured interviews at 7 & 13months after infant's/child's death. Interviews were audio-recorded, transcribed verbatim, and entered into Atlas.ti for analysis. An inductive approach to thematization was used to develop codes.ResultsParents: mean age 35.1years (SD=9.03); 33% Black, 27% White, 40% Hispanic; from 17 countries. Three themes emerged: immediately after death - shock and stress, needing help with arrangements, decisions on burial or cremation (conflicts due to finances, religion, culture), when and where to hold wakes, funerals/burials. Wakes and funerals--who prepares child's body, appropriate dress (deceased child, mourners), who can come (cultural restrictions),--by child age, parent choice, culture, religion, country. After burial/cremation--being with family, milestone celebrations.ConclusionChild death is devastating for parents, other children, grandparents, and family members.Practice ImplicationsRituals after child death require decisions about the child's remains, wakes, funerals/burials at time of great pain for parents. This is especially true for newly immigrated parents and those with language barriers where making arrangements is especially hard and often very isolating. Health professionals who provide support need to be cognizant of practice differences based on religion, culture, economics, family traditions, and individual preference and provide as much support and resource as possible. A list of religious leaders representing the community's cultures and funeral service providers who may provide lower cost burials/cremations is helpful.Copyright © 2016 Elsevier Inc. All rights reserved.
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