• Palliative medicine · Jan 2018

    Shared decision-making at the end of life: A focus group study exploring the perceptions and experiences of multi-disciplinary healthcare professionals working in the home setting.

    • Paula Brogan, Felicity Hasson, and Sonja McIlfatrick.
    • 1 School of Communication, Ulster University, Newtownabbey, Northern Ireland.
    • Palliat Med. 2018 Jan 1; 32 (1): 123-132.

    BackgroundGlobally recommended in healthcare policy, Shared Decision-Making is also central to international policy promoting community palliative care. Yet realities of implementation by multi-disciplinary healthcare professionals who provide end-of-life care in the home are unclear.AimTo explore multi-disciplinary healthcare professionals' perceptions and experiences of Shared Decision-Making at end of life in the home.DesignQualitative design using focus groups, transcribed verbatim and analysed thematically.Setting/ParticipantsA total of 43 participants, from multi-disciplinary community-based services in one region of the United Kingdom, were recruited.ResultsWhile the rhetoric of Shared Decision-Making was recognised, its implementation was impacted by several interconnecting factors, including (1) conceptual confusion regarding Shared Decision-Making, (2) uncertainty in the process and (3) organisational factors which impeded Shared Decision-Making.ConclusionMultiple interacting factors influence implementation of Shared Decision-Making by professionals working in complex community settings at the end of life. Moving from rhetoric to reality requires future work exploring the realities of Shared Decision-Making practice at individual, process and systems levels.

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