• Palliative medicine · Jan 2018

    Development and evaluation of the Dignity Talk question framework for palliative patients and their families: A mixed-methods study.

    • Qiaohong Guo, Harvey Max Chochinov, Susan McClement, Genevieve Thompson, and Tom Hack.
    • 1 School of Nursing, Capital Medical University, Beijing, China.
    • Palliat Med. 2018 Jan 1; 32 (1): 195-205.

    BackgroundEffective patient-family communication can reduce patients' psychosocial distress and relieve family members' current suffering and their subsequent grief. However, terminally ill patients and their family members often experience great difficulty in communicating their true feelings, concerns, and needs to each other.AimTo develop a novel means of facilitating meaningful conversations for palliative patients and family members, coined Dignity Talk, explore anticipated benefits and challenges of using Dignity Talk, and solicit suggestions for protocol improvement.DesignA convergent parallel mixed-methods design. Dignity Talk, a self-administered question list, was designed to prompt end-of-life conversations, adapted from the Dignity Therapy question framework. Participants were surveyed to evaluate the Dignity Talk question framework. Data were analyzed using qualitative and quantitative methods.Setting/ParticipantsA total of 20 palliative patients, 20 family members, and 34 healthcare providers were recruited from two inpatient palliative care units in Winnipeg, Canada.ResultsMost Dignity Talk questions were endorsed by the majority of patients and families (>70%). Dignity Talk was revised to be convenient and flexible to use, broadly accessible, clearly stated, and sensitively worded. Participants felt Dignity Talk would be valuable in promoting conversations, enhancing family connections and relationships, enhancing patient sense of value and dignity, promoting effective interaction, and attending to unfinished business. Participants suggested that patients and family members be given latitude to respond only to questions that are meaningful to them and within their emotional capacity to broach.ConclusionDignity Talk may provide a gentle means of facilitating important end-of-life conversations.

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