• Eur J Oncol Nurs · Apr 2016

    An instrument to collect data on frequency and intensity of symptoms in older palliative cancer patients: A development and validation study.

    • Aurélie Van Lancker, Dimitri Beeckman, Sofie Verhaeghe, Nele Van Den Noortgate, Mieke Grypdonck, and Ann Van Hecke.
    • University Centre for Nursing and Midwifery, Department of Public Health, Faculty of Medicine and Health Sciences, Ghent University, UZ 5K3, De Pintelaan 185, 9000 Ghent, Belgium. Electronic address: Aurelie.VanLancker@UGent.be.
    • Eur J Oncol Nurs. 2016 Apr 1; 21: 38-47.

    PurposeTo develop and validate an instrument to collect data on symptoms (frequency/intensity) in older palliative cancer patients.MethodsA four-phase instrument development and validation study was performed. A preliminary version of the instrument was developed through a literature review. Face- and content validity were assessed in a Delphi-procedure with eleven experts. Cognitive interviewing with 24 older cancer patients was performed to enhance content validity of the instrument. Test-retest was performed to assess the stability.ResultsAn 40-item instrument was developed. The Assessment Symptoms Palliative Elderly (ASPE) collects data on frequency and intensity of 24 physical, 10 psychological, 3 functional, 1 spiritual and 2 social symptoms. Content validity was excellent (I-CVI 81.8%-100.0% and S-CVI 92.9%). Cognitive interviewing allowed to improve the content validity. Test-retest showed substantial to almost perfect agreement for 87.5% of the items. No item had poor or fair agreement.ConclusionThis study resulted in the development of the ASPE which reflects good properties for face- and content validity and reliability. Cognitive interviewing has a valuable contribution in the validation process. The instrument can be used to gain insight in symptoms in older palliative cancer patients.Copyright © 2015 Elsevier Ltd. All rights reserved.

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