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- J Michael Soucie, Connie H Miller, Fiona M Kelly, Meredith Oakley, Deborah L Brown, and Phillip Kucab.
- Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC, Atlanta, Georgia. Electronic address: msoucie@cdc.gov.
- Am J Prev Med. 2014 Nov 1; 47 (5): 669673669-73.
AbstractThe development of an antibody in people with hemophilia to products used in the treatment and prevention of bleeding, also referred to as an inhibitor, is the most serious complication of hemophilia care today. CDC, together with healthcare providers, consumer organizations, hemophilia organizations, and federal partners, has developed a public health agenda to prevent the development of inhibitors. This paper describes a public health approach that combines a national surveillance program with epidemiologic, laboratory, and prevention research to address knowledge gaps in rates and risk factors for inhibitor development, and in knowledge and behaviors of patients and providers, in addition to screening and treatment practices.Published by Elsevier Inc.
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